My oncologist and I talked about how sick I was this past weekend during my appointment today. Because I've had pain in that general area for about a year and a half and nothing has shown up on CT scans, she's referring me to a specialist. I was startled to hear that the CT scans don't show the stomach or intestines very well but when I thought about it, I remembered that I don't drink barium or anything special for the CT scans.
My oncologist thinks I should have an endoscopy test (and I can see possibly a test involving barium as well) and the specialist she's referring me to will set that up. She doesn't think that the problem is cancer-related but is more likely the sarcoidosis.
As far as my cancer goes, my CA 15-3 tumour marker was 40, which is well within normal for me. Apparently one of my liver enzymes - AST - was a tiny bit high at 37 but she's not worried about it because it's been at that level before.
We also talked about replacing my Pamidronate with a new treatment that was approved by Health Canada for treatment of bone metastates only a month ago: denosumab. It's a monoclonal antibody (something I remember writing a paper about way back in high school - they were the next great hope for cancer treatment back then) and it's more effective than Zometa (the treatment used in the US) or Pamidronate. It's administered sub-cutaneously (under the skin) once per month. If I go on it, I'll still need to have my port flushed because there's no way I'm getting rid of it.
The only problem with this new drug is that it must cost big bucks because she asked me whether I had any insurance. She doesn't like dealing with the financial aspects to treatment - and she's not trained to do it - so it's a good thing that there's a specialist over at the cancer centre who helps people figure out how to pay for treatments. This person is going to call me to find out about our insurance and talk to me about financing this treatment. I'm happy to say that Ian checked online for me and it turns out that his insurance will cover 100% of the cost of this new drug. Yay for me!