Wednesday, April 12, 2017

Gastroenterologist appointment

Have I mentioned my stomach issues? I don't remember. Apologies if I'm repeating myself.

A bit of background: I have degeneration in my lower back at L4-L5 and L5-S1 which causes pain and the pain was worse after my ovaries came out in 2007. To deal with that pain, I took Celebrex (a non-steroidal anti-inflammatory drug, or NSAID) starting in late 2007. I didn't really take it properly because I didn't always take it with food; taking it with food is strongly recommended because NSAIDs can cause stomach problems. However, my stomach was fine. Then in late 2014 I heard about a new painkiller that would help with headaches (I grind my teeth and get headaches from that even though I wear a night guard). This new amazing painkiller was Naproxen (Aleve) and wow did it work. It worked faster and better than Tylenol and so I took it occasionally.

What I didn't realize is that Naproxen is also an NSAID and, like Celebrex, can cause stomach problems. In the summer of 2015 I started experiencing severe stomach pain almost certainly due to the combination of NSAIDs. The pain was so bad that I couldn't stand up straight and I almost never wanted to eat. I was taken off of the Celebrex and stopped taking the Naproxen... but the damage was definitely done.

My family doctor put me on 60mg of Dexilant per day plus Gaviscon and the combination worked to reduce the stomach pain. I still had occasional problems but I could stand up straight and eat. I also started to gain weight; I put on over 20 pounds.

Then early this year I started experiencing a new pain in my stomach. My family doctor doubled the Dexilant dose and referred me to a gastroenterologist in Oakville.

The gastroenterologist said that my stomach problems are probably related to too much acid there and that my Dexilant dose is very high. I have no idea how to reduce the acid level (I'm sure we'll deal with that later) but he wants to try to reduce the Dexilant; apparently it can be increased or decreased without any problems or side effects which is great. Before we do anything, though, he wants to see my stomach so I'm scheduled to go in for an endoscopy on the afternoon of May 3. He'll look around, take some samples (ie biopsy a few areas) and test me for H. pylori.

He also said that my recent weight gain may be related to my other painkillers, which are known to slow down the intestines, and that reducing the amount I take may make it easier for me to lose weight. (In addition to some dietary and exercise changes, of course!)

Speaking of reducing that painkiller, my family doctor is apparently going to be away for six or eight weeks starting in May. There's no way that I will do this kind of reduction without his supervision or the supervision of a doctor to whom I'm referred so that will wait until summer. I'm quite sure I'll be fine.

In other news, getting to yesterday's appointment was a bit of a production. The original plan was for me to take Gozer to Ian's parent's house so that they could visit with her, but neither they nor Gozer were feeling well. Gozer was groomed on Monday and had mild diarrhea afterwards. She's getting better but I didn't want to impose Gozer (and the possibility of an emergency diarrhea walk) on people who weren't feeling well. Also, I didn't think it was a good idea to take Gozer on a long drive, so the new plan was to take her to Ian's work.

Then I found out that a good friend of mine went into residential hospice yesterday. She's been receiving palliative care at home for about a year but has declined significantly in the last few weeks; she has metastatic breast cancer with brain tumours and she's out of treatments for them. The tumours are growing and causing additional cognitive and physical difficulties and she could no longer be cared for in her own home. At this point it isn't known if she'll be able to receive visitors.

I was and am devastated to hear this. She's lasted an incredibly long time: she wanted to see her kids start school last September and she did! Plus she was here another six months or so! But she's close to the end now and I'm grieving... there are many, many tears and that tight feeling in my chest that makes me want to curl into a ball in a dark corner. I told Ian what was happening and we decided that since I was crying so much and was so weepy, it wasn't safe for me to drive to Oakville. Driving while crying really isn't safe for me.

So instead of taking Gozer to Ian's work so that she didn't have to do a long car ride, the new new plan was that Ian came home and the three of us drove to and from the appointment. Fortunately, Gozer was just fine during the drives and we didn't have to stop for any emergencies. Ian took her for a nice long walk during my appointment and she's doing better.

What a day, huh? I'll keep you posted with what happens with all my upcoming appointments and stuff.

Tuesday, April 04, 2017

Radiation oncologist appointment

I saw my radiation oncologist this morning for a brief follow-up. She was slightly less surprised than my regular oncologist that my skin over the irradiated area was still pristine because the doses weren't given to a broad area but were very small and came from multiple angles.

We talked about the fatigue I'm still experiencing slightly and she said it was normal and would get better. It's not that bad but I definitely need a nap every day - especially if I do anything outside the house. I can live with that - honestly, although I know it was better before radiation, I'm not sure it was that much better - but a little less fatigue would be nice.

She asked about pain, and I'm really not experiencing any now, which means that either I have no pain or it's very well-controlled with my painkillers. I told her that I was thinking of waiting until summer - or at least until this fatigue is over - and then tapering down my painkiller. I suspect that I truly have no pain because the radiation should have taken care of whatever was there and that I don't need this level of painkiller. Reducing the painkiller is going to be a giant production to; a couple of years ago I changed painkillers and it was a very difficult experience. I don't know why I wanted to wait so long to do it except that I'm not looking forward to that particular experience.

She said it was better to do the taper sooner rather than later, and the reason she gave for it is that if I'm taking painkillers to deal with pain, I won't become addicted to them but if there's no pain then I'll become addicted. I'm not quite sure what she means by "addicted"... I don't crave them or get high from them (not that I could, anyways; painkillers given for cancer pain fix the pain first and get the person high second, and at this point I've been taking them so long that my brain has rewired for them), and that's not going to change.

In my case, my biggest issue is that I'm dependent on the painkillers so that when I miss a dose, I start going through withdrawal symptoms. It's those withdrawal symptoms that make the tapering down difficult. I will call my family doctor sooner rather than later (or the summer) and get the process started. I think I've read about things that can help this process be less uncomfortable and maybe they'll work for me.

Other than that, she's going to see me again in four months to see how I'm doing. Overall, she's very pleased with how things are going, so I am too!


Monday, March 27, 2017

Back to normal?

I've been taking it easy and feeling pretty good lately. I haven't felt as tired as before abd I've been to the studio again. Yay! I'm still working on my earrings and I haven't given up even though it got difficult at one point. So that's something, right? I did post a picture of the earrings in progress over on my @gozermom Instagram page (Gozer has her own @gozerdog page. I know, I'm worse than some parents).

It's good that I'm feeling​better because spring is coming and there's lots to do in the yard!

I was supposed to see my radiation oncologist last week but she was away so my appointment will now be next Tuesday, April 4.

Anyways, theres not much going on but I thought you'd want to know that things are pretty well back to normal.

Sunday, March 19, 2017

Not quite as better issue I thought

You know how it is when you've been sick and you think you're better so you overdo it and relapse? That's me today. I loved being in the studio yesterday but however many hours I was there - four? five? - was way, way too many. I slept hard last night but was exhausted when I got up. I ended up sleeping all afternoon and would still be asleep if Ian hadn't woken me for dinner. Looking back, I've been asleep for about 15 or 16 of the last 24 hours.

I had planned to go to the studio again today to see my friend and to work on my project but I was just too tired. I was also supposed to go grocery shopping but didn't get up from my nap to do it.

I expect I'll be better soon but I think my next visit to the studio will be only two or three hours.

Saturday, March 18, 2017

At the studio today!

I went to the metalsmithing studio today! I haven't been there in over a month because I'd been so tired. Well, and also because when I'm not feeling creative I have a hard time figuring out what to work on when I'm there. Because my creativity hasd only recently returned, I figured I'd be better off figuring out a project and working on that while I was there. 

I looked through my stone collection (I have lots, all sorted by colour) and picked out two pairs of rhodochrosite stones to​ combine into earrings. One pair is a 6mm diameter round cabochons in a transparent medium and the other is a pair of 20mm x 8mm ovals in the more usual pink and white banded pattern. I didn't take any pictures do you'll have to wait to see what they look like.

Anyways, I spent the bulk of my time making bezels for these four stones. A bezel is a strip of metal that wraps around the stone; to set the stone, the top edge of the metal is compressed against the stone. This is a very secure setting.

I could tell it had been a long time since I'd been at the studio because it took me a long, long time - 2 hours! - to calculate how long you make each bezel. It should have taken 30 minutes... 45 minutes tops. For round stones, all I do is calculate how long the strip should be by calculating the circumference of the stone and bezel. The way to figure it out for non-round stones is to cut a narrow strip of masking tape, wrap it carefully around the bottom of the stone, and use that as the base length. I needed to add enough metal to account for the thickness of the bezel strip and this is where I ran into problems.

Typically I pretend the circumference comes from a round stone, then figure out the diameter for this pretend round stone, and then recalculate the circumference by adding the bezel thickness to theatdiameter. It's not an exact method but it works pretty well. For whatever reason, instead of working with circumference I was working with area... Which did not give me the results I expected. Worse, it took me a while to figure out what was going on. Oops!

In the end I got my bezels cut and soldered closed. I'd hoped to do more in the hours I was there but at least I got something done.

Now I'm very tired. All this thinking has left me sleepy.


Thursday, March 16, 2017

Definitely better!

I can now safely say that I'm doing much, much better. I don't know if I can say for certain that the side effects are completely over, but the worst has definitely passed.

The pain has been unnoticeable for some time now although it flared up when Gozer launched herself off of me using the radiated area (we were at the vet's and she was sitting up on me with her butt on my neck; when she jumped off, one of her back feet was in the area of the spot and she pushed against it). As quickly as the pain flared, it disappeared.

Fatigue-wise, I'm doing great. I'm waking up feeling well-rested both in the morning and after my naps, and my naps are back down to a reasonable length. I've always been a napper so having to take naps each day is normal. What wasn't normal was having naps lasting hours and hours long and not feeling rested afterwards but all that is over.

I'm also starting to feel engaged in the world around me. Since treatment I've been feeling somewhat depressed and uncreative. I felt like the world around me was grey and dim and that time was just passing me by. Now I see colour!! I'm excited to see the sun and to see what each day will bring. With the lifting of my depression I'm also starting to feel like I need to start creating things. I look at inspiration pictures and I actually feel inspired to design and make things. This is so exciting!

So yes, whether all the side effects are over or the worst has passed, I'm feeling good.

Monday, March 13, 2017

Getting better

I think I'm feeling a bit better. The extra pain is gone and although I'm a bit tired right now, I don't feel as exhausted as I did last week. I also stayed awake all day yesterday even if I did have a two hour nap in the evening.

It would be great if my side effects were done and over with because I'm tired of being tired. Honestly I'd be thrilled if the side effects were markedly better even if I still have to have naps sometimes. I was napping in the late afternoon before radiation treatment so I'd be surprised if I didn't nap after treatment and after the side effects​are over.

We also think we've figured out where the mice were getting in. We set six traps last night and caught zero. So the mouse problem might be over, too!

Things are definitely looking up.