Friday, June 11, 2010

Results

So the results are in: the mediastinal nodes are enlarged due to sarcoidosis. The surgeon biopsied the three of the four enlarged nodes that were below the neck and they all showed sarcoidosis.

At least it's not cancer... although to be honest, more cancer would be easier to deal with than a second systemic illness that looks exactly like cancer on scans. But then more cancer would be worse in terms of life-time prognosis. So I guess I'll be around for a long time but have to do more biopsies when things show up on scans. That's a good thing.

I need to see a respirologist to figure out treatment for these enlarged nodes. the main treatments for sarcoidosis are steroids. Personally, O'm not a fan of taking steroids because the main side effects are acne, weight gain, and mood changes. I'm already bigger than I want to be and I already take antidepressants; I don't need steroid "help" in either area.

Sometimes sarcoidosis is left untreated because it goes away on its own. Since I don't have a cough or too much shortness of breath I'm hoping that we'll just leave things as-is or not have to take steroids for very long.

2 comments:

The Hyperlexian Aspie said...

wow, i can't believe it's more sarcoidosis. that is so weird and awful. i guess not so awful as more cancer, but it seems a bit unfair for you to have more of another shitty sickness.

love,
vicki

PussDaddy said...

I am glad it isn't cancer. Although I am sure this is not the greatest thing that ever happened to you either. Just glad it is not cancer tho.

PussDaddy