Sunday, September 28, 2014

How does our garden grow?

It grows weedy and overgrown, for the most part. But it's our yard, and I know you all want to see it.

Finally, I've got the yard pictures done. I'm not sure that they're in completely the right order but they're all annotated, I think. So here you go - there's a lot of them so they're after the jump.

Monday, September 22, 2014

Conference

I'm still working on the yard/garden post but I was at a conference this weekend and didn't do any work on it. I figured you'd want to know about the conference so I'm updating you on that right now.

This conference was held by the Metastatic Breast Cancer Network, which is a volunteer-led organization dedicated to people with metastatic breast cancer. This year's conference was held in Chapel Hill, NC so I was there for the weekend.

The conference runs for two days and although I'd planned to go to both days, I didn't make it. I had rented a car and locked my keys in the trunk of the car. I called the rental car company and they sent someone out to unlock the car but it turns out that they still make cars that have no internal trunk release and we couldn't get the trunk open. By the time we figured all that out, the conference was over so I ended up going to the airport early. It was a very long, very boring day.

Fortunately, Saturday's sessions were interesting. There was a talk on molecular genetics that I really enjoyed. It wasn't very detailed but it gave a good overview of the current science and research trends.

The most unforgettable session was the one on pain and sexuality. I expected this to be a session about how to adapt sexuality to the pain but it wasn't that at all. It turns out the speaker is a leading researcher in the area and so the talk was more of how she got the knowledge she did. In all that meandering, I learned a few things:

  • When men have sexual problems, it's often considered to be a physical problem but when women do, it's often considered psychological.
  • Before addressing sexual pain, the cause of the pain - nerves, skin, or muscle - must be determined.
  • Neuropathy can occur in the genital area in the same way as it does in the hands and feet because the nerves are the same size. THIS BLEW MY MIND.
  • Any treatment that can affect the mouth can affect the genitals in the same way because the tissues are structured the same way and are both mucous membranes (she had pictures to emphasize this point). 
  • If the area isn't used, the muscles can atrophy and cause pain, just like they would anywhere else.
  • Dilators don't help all that much; a better solution is apparently a modified Hodge pessary kept in at night.
  • If the skin has a rash or is very delicate use Crisco shortening(!!) to protect it. Crisco can also be used with the pessary and in place of Replens. It works because it doesn't contain harsh chemicals and it doesn't come off easily.
The session ended up being quite funny and informative. I'm happy that I went just for that because it really was informative. 

Wednesday, September 17, 2014

Bit of this and that

I'm still working on the pictures of our yard but I've been lazy and haven't finished annotating them all. There are over 150 of them, after all, which is more than even red carpet posts used to have.

I was out weeding in the yard today. I spent about three hours out there and I pulled up around 100 big dandelions and 50 or so baby-sized ones in a 250 sq ft area. There's at least double that area to go but those areas don't have quite so many of these dandelions. I knew the lawn was full of weeds but I didn't realize just how bad it is. I'm trying to get them pulled so that I can rake the lawn to get the growing bittercress and veronica out before reseeding the yard.

Gozer hasn't been feeling terribly well lately. She was on antibiotics for a hotspot which made her vomit. After she went off them, she was constipated for a few days and then yesterday she started having diarrhea. Poor girl. She had diarrhea again today and we're hoping that her system will settle down. We're hesitant to take her to the vet because we don't want them to give her pills and we figure that we can help her with diet. She's already getting half squash for food and if she still has problems tomorrow, we'l give her rice instead of kibbles for the other half.

Well, Ian will give her rice for food; I'm heading to Chapel Hill, North Carolina this weekend for a conference. I'm nervous about going because I don't think many of my friends are going and because Chapel Hill is near Raleigh and that area holds some memories for me. I'm hoping that it'll be a fun weekend and if it turns out to be lame, well, I won't be there that long.

Tuesday, September 09, 2014

Gozer in the yard

I took a bunch of pictures of our yard and the plants in it yesterday. It was a lovely sunny day so I got some good pictures for you. However, it's going to take another day or so to get the pictures in the right order and commented and stuff so in the meantime, I thought I'd show you some pictures of Gozer, aka Miss Flufflybutt.

Hi mom!

Something smells good over here.

What could have been in this spot?

That smells really, really good...

...it'll make me smell good, too!!

I am look good, I smell good, and I'm feeling fine. Off I go!

Sunday, August 24, 2014

A lot about not very much

There's been a whole lot of not much going on around here. I've been spending time outside in the yard and I've finally started working on the dandelions that have grown to monstrous proportions. Seriously, some of those things, especially around our vegetable garden, are huge! Clearly whatever soil we're giving the vegetables is helping the dandelions.

The leaves are up to a foot long and the root is up to one inch in diameter; the leafmass is almost too big for me to hold when I try to rip them out. I'm not actually able to get the full length of some of the roots out and I know that I'll have to do some serious digging when the leaves grow back. I don't care about that right now; just getting the leaves and flowers out is enough for me right now.

One of the less pleasant parts about clearing out these giant dandelions is that we have an unusual variety of ants in the area. They're called citronella ants and they're named for the smell they give off when they're crushed - it's described as a pleasant lemon scent in places but we think it's more of a cloying, chemical, citronella scent. These ants apparently farm root aphids (aphids that eat roots like dandelions and potatoes but not carrots or radishes for some reason) and mealybugs and their territory extends from the vegetable garden to the fruit trees. Anyways, when I pull out the dandelions in that area I invariably crush some of those ants and the smell just reeks. Blech. I don't think it repels mosquitoes, either.

We'd seen these ants a while ago carrying white things around and we assumed that they were carrying eggs. A bit of research showed that no, those are aphids or mealybugs, and they're moving them so that the aphids eat more yummy roots (and mealybugs eat more yummy whatever) so that the ants can eat the yummy honeydew that the aphids and mealy bugs produce.

It is kind of neat that there are more than one species of ant that farms their food and that they do it in such different places.

I really have been meaning to take pictures of our yard but I've been waiting for good light. If the light isn't good soon I'm afraid that you'll get pictures of a bunch of dead flowers, which are pretty in their own way. Also, our contractor neighbour is mad at me for talking to his employee about the way he was encroaching on our property while parking the truck and then for talking to himself in front of that same employee about parking the truck and trailer in front of the fire hydrant. He also thought that I was stalking him or his employee because I spoke to his employee that one time.

All of that is sort of hilarious in the way that neighbourly disputes often are, but the thing that isn't funny is that the neighbour didn't approach me to talk to me about the problem. Instead, he talked to Ian because this neighbour "doesn't talk to women". He said all sorts of awful, misogynist things to Ian, including telling Ian to control his woman. As if that's even possible!

I did apologize via email for speaking to the neighbour's employee directly and for talking to him about an issue in front of the employee, because underneath all that bluster and completely offensive language I understand that it's important to him to appear to be in control and that my actions caused him to lose face in front of his employees. And it's really no big deal to talk to him directly and privately if I have a concern, although apparently it's much too much to ask that he afford me the same courtesy.

Anyways, the point of that diversion is that because this neighbour thought I was stalking him or his employee, I don't want him to think that I'm stalking him by taking photos of the property. Of course we're also getting quotes for work on our driveway and they're taking all sorts of photos, but that's a bit different. As I write this, it occurs to me that it would be a good idea to take photos so that we have some "before" pictures of the areas that will be changed.

Speaking of getting work done, this neighbour has repeatedly asked us to ask him for a quote before we hire anyone and has been mad when we haven't done that. However, after this whole kerfuffle there's no way I'll do business with him. I can't choose my neighbour but I can choose who I hire, and I choose not to hire people who express themselves in misogynist ways. Even if he was awesome at doing stuff (which he isn't; some of the work we need to have done is fixing work he did for us before), I wouldn't hire him just on principle. I know that this decision won't improve the relationship between the households much (and that he might end up doing petty things like encouraging his guests to flick cigarette butts into our yard as a result), but I'm willing to take that risk.

Hopefully I'll get to take some photos for you this week. We really do have a nice yard even if it is a little overgrown and unbalanced and full of weeds. I'd like to show it to you.

Huh. I sure wrote a lot for not much going on, didn't I? It just goes to show that I can talk a lot about anything :)

Saturday, August 09, 2014

Transition finished!

I think the painkiller transition is finally over. We've found the right level of the new painkiller and although I occasionally have twinges in my sternum (which may be related to Gozer jumping on me), I'm not experiencing any real pain.

I've noticed some changes since I've switched painkillers, mostly related to sweating. I know this might be TMI but it's part of the way painkillers affect me. Before, my entire body would sweat. Seriously - my fingers and arms and legs and even my toes would sweat, and I developed little bumps around my eyes from sweat. Because I sweated so much, I drank a lot of water but didn't pee as much as you might think.

All that has changed: I now sweat only in the more normal places - like under my arms and on my scalp - and I pee way more often. My sweat also smells different to me; before, it didn't have much smell but now it smells the way it did before I ever had cancer. So that's a good thing, I guess.

I'm also finding that I enjoy my baths less. I loved taking baths and would take several each day... which, it turns out, wasn't a good thing. A hot bath increases the amount of painkiller I absorbed and then once the bath was done I'd experience withdrawal symptoms (like increased sweating). In other words, I was abusing my painkiller patches. I had no idea that I'd been doing this until I went to have a bath and it just didn't feel the same. I was ashamed once I realized what I'd been doing, and that shame was probably made worse by the fact that I was mildly depressed. At least I'm off the patches now and it's not possible for me to unknowingly misuse my pills.

The mild depression is gone now. My psychologist is away until the end of this next week so I wasn't able to make an appointment to see her. If I'd been feeling worse I'd have asked to see another psychologist in the clinic but I figured I wasn't doing too badly. I'm feeling much more emotionally even and am generally happy now so I think I'll be ok.

I'm really happy that the transition is over. I like that I'm feeling more like a normal person with the pills than I felt with the patches... but mostly I like that the transition is over.

Sunday, July 27, 2014

Update on me and Gozer

I'm feeling a bit better now although my digestive system is still not quite right. At least I'm not at the point where my belly and gut are so distended that I can't wear anything constrictive, which is where I was in my last post. I'm also feeling less depressed although I'm still somewhat lethargic.

I haven't called my psychologist yet because I keep wishing that I could just fix this mild depression myself since I have the tools to do it. However, the fact that all of this is related to the change in painkiller medication means that I don't have much control over it. I'll call her tomorrow and set up an appointment.

In other news, Gozer saw her dermatologist last week. The dermatologist was happy to see Gozer looking good and scratching and licking less. We think the allergy shots are helping but we won't know for sure one way or another until Fall. Gozer still has yeast problems so for two weeks she'll receive her anti-yeast pills every day instead of two consecutive days each week. As well, the dermatologist gave us a medicated shampoo that we're to use one to three times a week; on the days that Gozer gets a bath, we're to wash all of her bedding, blankets, leash, and collars.

I also have to keep track of Gozer's itchiness each day on a scale of 1-10 (1 = least itchy, 10 = crazy itchy) and email the results (along with her regular calendar of pills and appointments) to the dermatologist each month. Finally, we decided that we're going to wait until the Fall to change her diet to deal with her food allergies, mainly because we want to give the allergy shots more time to work and make a difference and to get her yeast problems under control.

Gozer doesn't much like getting bathed, especially since this shampoo has to sit for 5-10 minutes before it's rinsed off. She's more resigned to the process than she used to be, although it's difficult to get her into the bathroom where she gets a bath. However, we've discovered that she love love love loves carrots so we grate some up for her and feed her the grated bits as a treat and that keeps her happy.

Oh, and it turns out that she knows the command for "Speak". We had no idea!

Monday, July 21, 2014

A little TMI whine

I've been having to take percocet to deal with the pain because the amount of the new painkiller wasn't enough. I talked to my family doctor's office today and my doctor is going to increase the painkiller amount. 

In the meantime, I'm having to deal with a common side effect of these drugs: constipation. Some (Ian) might say that I'm full of it (ha ha). I know this is a bit of TMI but it's (unfortunately) a fact of life with this stuff. Everything had been going so well for so long that I kind of forgot that I have to make sure that things stay going well. 

I've taken some dulcolax and it'll help eventually right now I'm quite uncomfortable. If this goes on for much longer I'm going to be very heartburny which can be unpleasant for me and anyone I talk to. Gum can only cover up so much, you know? 

Sigh. I'm whining, I know, but I figure that it's important to talk about the stuff that isn't so pleasant, too.

I've mentioned before that I've been experiencing some mild depression with this transition and since it's still going on (it's mild, but it's there) I'm thinking that it would be a good idea for me to see my psychologist. I know I have the tools to deal with all this but I'd feel better if I saw her.

I love not using the patches but I'm not in love with this transition. I'll be very happy once the amount of painkiller is stabilized and I'm back to being my regular happy self.

Friday, July 18, 2014

Regular oncologist appointment

Yesterday was my regular oncology appointment.

My CA 15-3 tumour marker from three months ago was at 43, which is higher than it's been in years but only slightly more than the previous two values of 39 and 40. Since the rest of my bloodwork yesterday was awesome and shows no problems, we agreed that there's no reason to be concerned about the tumour marker value.

It turns out that August will be scan time so I have the bone scan on August 5 and the CT scan on August 18. I'll get the results when I see my oncologist again in October unless there's a reason to be concerned - which we don't expect will happen.

In painkiller transition news, I'm doing ok. I'm definitely sweating less (which my oncologist noticed), and I'm feeling less depressed and lethargic now. I've still got some pain but it's not too bad so I think the worst of this transition is over.

EDIT: I was looking back through my tumour markers and the value three months ago was 32, down from 40 and 39 the three and six months prior to that, so it appears that the values are still oscillating. I'd checked because I was curious about when it had last been at or above 43 and when I discovered that it hadn't been that high since 2007 I was feeling a tiny bit worried. I was concerned that if the marker was starting to creep up, my years of stability might be coming to an end. Now that I know that the last value was 32, that tiny bit of worry is gone.

For fun, here's my current tumour marker graph:

Tuesday, July 15, 2014

Changing pain medication

I didn't realize that it had been a month since I last posted here. Clearly there's not much going on in my life these days.

One change is that I saw my family doctor last week so that he could see how I was doing and I asked to change pain medication. I'd been wearing the fentanyl patches for some number of years and lately especially I've been getting a heat rash - or prickly heat - under the patches. This happens when sweat has nowhere to go so it goes back into the skin, causing the sweat glands to be blocked and thus causing the rash. The rashes have been getting worse since the brand of generic patch changed but it was happening before that just because I sweat so much.

My family doctor agreed to put me on OxyNeo at about 3/4 the equivalent dose to my patch dose. I have no idea how much of the patch dose I was getting - it won't all go through the sweat or rash, so I don't know if I was getting 100% of the dose. I took the patches off and started taking the new pain medication on Thursday night.

It turns out that I was getting more than 75% of the dose so over the last few days I've been going through some mild withdrawal symptoms. The biggest symptom I had was what I call "woogly back" or Restless Leg Syndrome in my back (apparently it happens, although it's rare). I managed to deal with most of this with percocet in the first couple of days, to make the reduction in painkiller more tapered, and clonazepam in the days afterwards. I've also been experiencing some mild depression and lethargy.

Today was the first day that I didn't have woogles or need to take the clonazepam, and I discovered that this painkiller level isn't enough to deal with my pain. Starting this afternoon, the pain started. It isn't a a stabbing pain, but a light twingy, squeezy pain. Sigh.

So although I was really, really trying to make this level of painkiller work by not supplementing it with anything else, I'm not going to fool around with pain - once pain starts, it's harder to control so it's better to get ahead of it. I called the doctor earlier today, before the pain started, to let him know about the mild withdrawal and that I was doing ok so far but I'll have to call in the next couple of days once I've got the pain under control to see just how much I need to bump up the amount of painkiller.

On the bright side, I'm sweating less and I now definitely know that I still need the painkiller, even though the sternum is healing. I'll be very happy to leave this transition period with its woogles and lethargy and depression behind, however. This hasn't been an enjoyable few days.

Wednesday, June 18, 2014

Still working on the garden

I should take pictures of the garden but I'm going to wait until I'm done planting. I've planted most of the climbing plants now but I still need to plant the hen and chicks (I forgot about them before) and I may have purchased a couple more coneflower plants in shades of red today when I went to get more soil. I love purple coneflowers but I thought the red ones would add a bit more variety.

I've got one of those %&%)@! canker sores again. It's on the left side (of course), in my lower jaw (of course), where the gum meets the cheek (of course) and it's currently about 8mm in diameter. By the looks of things, there's another one forming just to the left of the center along my lower mouth. I wouldn't be surprised if the current one merged with the new one. I'm rinsing with salt water but it isn't helping much. Anbesol (or whatever it's called) does help a bit and I'm putting that stuff on before bed so I won't be woken up by the pain. Because oh my goodness it hurts. Maybe it's time to start brushing with Biotene toothpaste, which is supposed to help with them.

Ian's out tonight and I'm watching this documentary on UFOs and aliens (and the possibility of a coverup). All these people - some of them military - are talking about crafts they've seen and aliens they've seen. The narrator says that people don't want to experience a UFO or alien encounter but I think that would be awesome. Of course there's life out there somewhere although I don't know if (or why) they would be here on our planet. Anyways, if aliens really existed and visited, I'd love to meet them.

Until that day happens, I've got a garden to work on. And a canker sore to heal somehow.

Sunday, June 15, 2014

More about the garden

It turns out that taking a day off of planting wasn't such a bad thing. I rested up and was able to get quite a lot planted yesterday: all of the perennials I'd bought (including asters, which I forgot to mention) as well as the begonias, zinnias, and petunias.

I think I've discovered why we had a bit of a "dead zone" on that hill where I planted all of these plants. When we had the landscaping done, either they didn't add new soil or else it's all just washed away and what's left is mulch on top of clay. And rocks. There's no soil to speak of and so no nutrients - no wonder all the plants were dying in that area!

When I planted these new plants, I added what I thought was lots of soil there so that the plants have a chance. Hopefully I've given them enough; I used some 4-in-1 organic soil so there should be something for them. I'm not totally opposed to the use of fertilizers but I'm concerned about their environmental impact and so I'd like to avoid them if at all possible.

This afternoon we got some of the groundcover plants in the ground and I got the salvia planted as well. I think I've just got vines and things that climb or trail left to plant and I hope to get them done in the next two days.

I also cut my lupine flowers down today as they were starting to go to seed and I have so many now (and seeds) that I don't need more. Say what you will about this winter but it made my lupines thrive and it killed off all of my lupine aphids so they're positively thriving.

Speaking of this past winter, it was very difficult for a number of trees and shrubs in our area. Our cherry tree's central leader has started to die off a bit and at least one of our shrubs barely survived. The buds on our weeping willow started to crack open but then stopped and now all of the branches are breaking off. The root stock is doing just fine; it's trying really hard to send growth out. We think that there's growth in the grafted area so the tree might yet be saved but we don't know. One of our rosebushes that had been doing incredibly well last year had to be cut back almost right to the ground.

All through the neighbourhood, trees and shrubs are dead or dying. I don't know if it was the cold or the ice or the snow or what but it really affected things around here. For all I know, this kind of killing winter is actually good for the trees and shrubs because once the dead stuff is cleared out, they all seem to be thriving.

I'm looking forward to getting everything planted in the garden and spending my afternoons puttering around. It turns out that I don't love the hard work so much as I love just walking around, trimming these flowers or pulling those weeds. It'll be nice to be able to be a bit lazy again.

Friday, June 13, 2014

The garden

This last week as I've been working in the garden, I've developed an appreciation and admiration for my sister who works in a commercial bakery. I spend a couple of hours on successive days working in the garden and I'm achy and stiff and sore and ready to stop, whereas my sister works on her feet lifting and moving and weighing things all day every day and has done for years. I'm in awe of her ability to keep doing this work because I'm quite wiped out.

I got the front garden done over the weekend; I planted some verbana, petunias, begonias, and a New Guinea impatiens (the regular impatiens is not available here because it just keeps dying). The flowers are all very similar shades of pink. Although there were other colours I liked, I chose this pink because it's most visible from far away. Ian thinks it's too much pink that's too similar but the flowers and foliage are all different and there's hostas in there to add colour, too. I think it's going to be lovely when everything fills in.

I spent yesterday working in the vegetable patch digging out some grass that had encroached on the patch, clearing out strawberries that had encroached on the patch and the path, clearing out raspberry runners as I see them, adding new soil to the patch, transplanting peppers, and planting some seeds. And pulling veronica weeds from the lawn; they're starting to flower and go to seed and there's quite enough of it in the lawn, thank you.

I still have quite a lot of work ahead of me. I went into a garden centre the other day just to look around and came out with rather a lot of perennials. We have an area at the back of the property that has been taken over by weeds and we want to put non-grass groundcover there so I bought 60 plants for there: 24 thyme, 12 irish and 12 spanish moss, and 12 of something else. Ian is going to help plant those this weekend.

Today I'd planned to plant the other perennials I bought: some more coneflowers to balance out the black-eyed susans, some stonecrop sedum, and a beardtongue (penstemon). Oh, and some hen-and-chicks sedum, which might go in the front, maybe, or in some rocks by the path by the waterfall in the back. I also need to plant the annuals that Ian's mom gave me, which include some red petunias, some zinnias, different kinds of asarina, and some salvia, as well as some pink begonias left over from the front.

However, I decided that I was physically exhausted and needed to rest more than I needed to plant so I did nothing at all. I keep discovering muscles that hurt - I understand why my back might hurt but how does my stomach get sore? And where did those muscles on my arms come from? I do feel better after getting some more sleep and soaking in a couple of hot baths but I'm nowhere near back to my regular self. The plants will be fine for a few more days before I get them into the ground, I think (hope). If I was my sister my garden would be done by now.

Monday, June 09, 2014

My mom's birthday

It would have been my mom's 66th birthday today and I still find myself missing her terribly. Our lilacs are blooming; they were her favourite flower and they remind me so much of her.

As the years pass I wonder when she would have died had she not killed herself. When would I have had to mourn her anyway, by now? Her mom (my grandmother, or Baba, as we called her) lived until she was 84, but she didn't have COPD like my mom did. And if she had mental illnesses, they weren't like my mom's - Baba had lived on her own for years before she was married and she had lived in her house for years before she moved into the home and later died. I don't think my mom loved being on her own in the same way I think Baba did; I think my mom was most comfortable with my dad and was very lonely. I imagine that she must have thought of all these years stretching out ahead of her and being unable to face them alone and lonely.

So would I be mourning and missing her now this year? If she hadn't killed herself when she did, I expect she'd have done it by now unless things changed dramatically for her. I don't think she'd have stayed alive until she died of natural causes so it's possible that I'd be mourning her now. There's something so sad about that, and also something oddly comforting. It's like time has caught up to me now, if that makes sense.

Although I still love my mom and I miss her, she lives on in my memories and my heart. Happy birthday, mom.

Sunday, June 01, 2014

Our trip to the UK

We just got back on Wednesday from our three-week trip to the UK. We made the trip because my youngest sister got (re)married and we wanted to be there to see it. I'm very happy that we went because I really wanted to be a part of the day with my sister.  Also, my sister's new husband has a huge family and they were all there for the wedding (they live in the UK so it was easier for them to get there); our family is really small in comparison and not everyone could make it so we, along with my sister's daughter, represented our entire family.

I cried through the whole wedding. I usually cry at weddings - that's just who I am - but this time I was crying in part because our parents weren't there. I really felt the loss of both my parents that day and even now as I write this, tears are coming to my eyes. I guess it isn't surprising that I'd miss my parents so much during a big life event but it took me by surprise.

The wedding was beautiful. My sister and her groom were radiant in their wedding finery and the ceremony was very touching. It was held at the registry office and they had the most beautiful vows! The reception was at a local pub which was fun because it was relaxed and casual. 

It's hard to summarize a three-week trip to another place, especially since we spent time in so many places, but I'll try. We spent our first few days in London near Westminster Bridge and the London Eye. We didn't ride the Eye but I did see Westminster Abbey (it's old and full of the dead), the British Museum (Vikings!!! the actual Rosetta Stone!!!), the V&A museum (beautiful jewellery and clothes and ironwork), the Tower of London (Crown Jewels and old buildings), and parts of central London (full of more tourists than Londoners).

From there we went to Manchester to spend a few days there for the wedding. It reminded me very much of Edmonton for some reason. We didn't do as much touristy stuff there because we spent a lot of time with my sister, her daughter (and I wouldn't have it any other way), and her new husband. I hadn't met my sister's husband before this trip so it was good to spend time with him. He's a very nice guy (with musical talent!) and it's clear that he and my sister love each other very much and are happy together. We spent some time shopping in the central part of the city and around where my sister lives and spending time at her flat. We did see the Manchester Cathedral, which was neat. On one of the days we went to Hope in Peak's Park where we tramped through sheep fields to a couple of caverns (Treak and Speedwell).

Then we were on our way to Scotland: a night in Glasgow and then up to Fort William, where we took the Jacobite train (aka the Harry Potter train) to Mallaig. This was a steam train (they provided the trains used in the Harry Potter movies) and it went over a famous viaduct. At Mallaig we saw seagulls nesting! 

After the steam train we headed down to Edinburgh. I took a day off there, which I shouldn't have done, because it meant that we couldn't go back to Glasgow. We did see Edinburgh castle (very old, lovely crown jewels - called Honours, and lots of people), the outside of the Scott Monument (I didn't want to climb the 286 steps to the top), and we hiked up Arthur's seat

We spent some time in nearby North Berwick at the Scottish Seabird Centre. That was an amazing place! They have cameras set up on the nearby nesting islands so that visitors can look around and see the birds. We also took a boat out near the islands to see the birds up-close. It smelled really bad but it was so amazing to see these nesting birds (mostly gannets but also a variety of gulls as well as puffins!!!!) cover these islands. On our last day there we went over to Falkirk to see the Falkirk Wheel, which is a super-cool replacement for a series of canal locks.

We spent our last night back in London and did absolutely nothing of note because we were tired and it was raining. And then we came home.

A word about our flights: they were both delayed. On the way out, we were delayed about an hour because one of the doors wasn't showing that it was closed. Just after we took off there was a medical emergency on board and we diverted to Halifax so that the person could get proper medical treatment. We ended up landing about an hour and a half late which worked out well because we got into our hotel room right away.

On the way home, the flight was also late. At some point the plane type was changed from a 63-row 777 to a 40-something-row 777 but no one knew that until they got to the gate... and the intercom system wasn't working. So the passengers would get in line to board but about 20% of them discovered that their seat assignments weren't valid, so they had to go and stand in another line to get reassigned and then they had to stand in line to board again. It was a major mess that could have been avoided. We flew Air Canada both ways and I can't help but think that they'd have been able to handle this situation so much better.

We traveled throughout the UK on the train, which gave us a chance to see much of the countryside. It was beautiful. I had no idea that rhododendrons grow wild in the UK, but they do, and they were blooming while we were there. Bluebells were also blooming, as were gorse (related to broom plants), and ferns were unfurling. It was really beautiful countryside. 

This trip, like the one we took to Atlantic Canada, could only be like a tasting menu; we had to pick and choose what we saw. We couldn't possibly have seen everything because there's thousands of years of history there and it would take years to see it all. I guess we did see a lot but I wanted to see more. In my head I could do more but it turns out that I can't do that much. It seems that I have a fairly strict two-hour limit on activities that involve being on my feet and that I need at least two (and preferably four) hours of recovery time after that. This meant that I just couldn't do as much as I wanted to; fortunately, Ian did end up seeing a few things without me so he wasn't completely held back by me. 

We had a wonderful time on our trip but we were very happy to come home. I missed Gozer very much (she was with Ian's parents while we were gone and was happy there after an initial settling-in period) and I get tired of being away from home. I'm thrilled we could go and spend the time there and that we were able see my sister get married. I'm very happy for her and my new brother-in-law.

Monday, May 05, 2014

Finally did the scans the doctor ordered

For years I'd put off doing the pelvic ultrasound that my doctor ordered for me. I'd also put off doing the bloodwork he ordered for me. But when I last saw him a couple of months ago, I committed to him that I'd do all my tests before we left for our trip. Last week I finally got both tests done.

I had the pelvic ultrasound along with the bone density scan he more recently ordered, on Friday. I had to have both the "internal" (aka transvaginal) and "external" ultrasounds done. Usually they start with the external one because the bladder has to be full but somehow mine wasn't so we started with the internal one. Blech. Then I went for my bone density scan and finished with the regular pelvic ultrasound.

The technician who did my ultrasounds was weird. She kept asking why I was having the scan done and didn't seem to understand that it was because I'm 45 and still have a uterus that should be checked once in a while. During the first part she asked me if anyone had ever said anything about the shape of my uterus. Ummm, no. For some reason she thought it was wider at the top than usual (still within normal parameters) but when she did the second ultrasound it was normal. I hope she's not the one reading the scans.

At least the scans and tests are done and I don't have to do them again for a long time. The bone density is super-easy but pelvic ultrasounds - both parts - aren't fun for me. My bladder usually gets overfull and I find the both exams extremely uncomfortable. I know that the internal exam gives a clearer picture but I find it invasive. I wish there was another way to get the same detail with a scan that wasn't quite so intimate.

Thursday, May 01, 2014

Shopping adventures

Today was pap smear day. Blech. It's not the worst medical test ever but it's far from my favourite (give me a bone scan any day!). Thankfully it's over for another few years.

I decided to indulge in a little retail therapy afterwards. Between our upcoming trip and spring finally almost here I'm in the mood for some new clothes. I bought a gorgeous skater (short semi-circular) skirt in white polka dots on black. The skirt hangs the same way all the way around - even in the center front and center back! I know that this doesn't seem like a big deal to you but it is to me. My body isn't a cylinder; in fact, it's a bit wider in front and back than it is on the sides. As a result, semi-circular skirts like this tend to drape really well on the sides but are flat in the center front and back. Somehow this skirt actually drapes in the center front and back as well as the sides. It's truly awesome. It may look good on no one else but for me and my body type, it's perfect.

I also bought a tunic. I love the bottom because it has neat pockets. The neckline is a round jewel neckline so it's kind of boring but it'll be fine for me. The sleeves are 3/4 length which I don't love; I'll leave them for now but I might think about adding an extension to the sleeves when we get back. Maybe at the same time I'll think about re-working the neckline.... or not. We'll see.

I have to admit that today wasn't my only retail therapy adventure; I've also bought some stuff online lately. I don't remember everything I've purchased because it hasn't all arrived yet, but I know that I bought a couple of comfy dresses and maybe a top. I also bought this super-gorgeous tote bag:

Sydney Love Color Block Large Tote
13" high x 21.75" wide x 8.5" deep with 10.5" handle drop
Weirdly, I have a scarf that incorporates each and every one of the accent colours used in the bag. I guess these colours must be "it" for this year.

Anyways, I had been carrying a large PC GREEN shopping tote bag with me when I traveled. It was the right size to comfortably carry everything but it didn't have a zipper, it was quite lightweight, and it had a big logo on the side. This bag is about the same size and is just as comfortable to carry but has a top zipper, no logo, and lots of small pockets. I carried it with me today and I'm very, very happy with it. Not only does it look awesome, it's comfortable to carry and holds a ton of stuff. I'm looking forward to carrying this whenever I travel.

I also bought a couple of pairs of walking shoes the other day. I replaced (again) my Merrell jungle mocs because they're so comfortable to wear and they hold up to hours of walking. I've been buying these shoes for quite a few years now. Although the soles don't last all that long and they can be slippery when they're wet, they're very comfortable when walking a lot. They also look nice enough with most pants and leggings.

I also bought a pair of these Skechers Go Walk shoes:
Skechers Go Walk shoes

I hadn't planned on looking at them at all but when I first put them on, my feet felt like they were surrounded and cushioned by all these little pillows. They were just as incredibly comfortable when I walked around and I figure that they'll be the perfect pair to wear when my feet are sore from walking. I don't think they'll last all that long because soles that soft just don't last but I think my feet will be very happy in them while they're still good.

When I started this post I didn't think it would be quite this long. I guess I've done quite a bit of shopping lately - certainly more than I thought I'd done! I still need a couple of t-shirts for summer but otherwise, I think I'm set. For now. :)

Monday, April 28, 2014

Getting ready

I may be feeling a tiny bit stressed now that our trip is only a week and a half away. At least we've booked hotels so we have places to stay! I've also booked us tickets for Titus Andronicus at the Shakespeare's Globe theatre in London and for the Vikings exhibit at the British Museum. And, err, that's all we've booked.

I suspect we'll be playing a lot of the trip by ear and figuring out what we want to do in each city once we get tehre. There's so much to do that there's no way we'll be able to do everything; like our trip to Atlantic Canada, our trip to the UK will be a "tasting" trip. We'll hit some highlights and and get a feel for the different areas but we can't see anything in depth.

In other news, I saw my oncologist on Friday. My CA 15-3 tumour markers are down to 32!! I didn't expect anything else but it's always nice to see that my tumour markers are behaving.

I also spoke to my oncologist about delaying my denosumab injection until we get back from our trip so that we don't have to worry about carrying the denosumab vial, needles, and sharps container with us. She was completely fine with that. Quite frankly, I'm happy to have a slight break from the denosumab because I'm still tired after the Twinrix-denosumab one-two punch.

Since those two last injections, I've been developing really big and painful blister rash things underneath my patches. They're like pimples but they don't have oil in them and when clothing rubs across them it feels like needles are being poked into and scraped across my skin. I'm wondering if my immune system is still a bit overloaded and that's why the reaction. If so, it's just as well to hold off the denosumab for a couple of weeks.

I've also been really tired for the last little while. I've been having to get up early every other day to give Gozer her allergy shot and that's wearing on me. I have a few things that I need to do before we go and I don't want to overdo things or burn myself out before our trip. As long as I keep myself grounded and get enough rest I think I'll be ok. I want to enjoy our trip to the fullest, after all.

Friday, April 18, 2014

Not much is happening here

So not much of anything has been happening here. We leave for the UK in three weeks and I've still got a lot of things I need to do before we leave. I've done some things, like order a new compression sleeve and gauntlet because mine are quite ratty and aren't quite right, but I still need to get the tests that I committed to my family doctor that I'd do booked and done before we leave. I'm running out of days and I'm not feeling well.

At least this is a long weekend and I can rest. The denosumab must take up a lot of my immune system because anything else that uses it knocks me flat. We had our Twinrix boosters on Wednesday (which knocked me out Wednesday afternoon) and then I had my denosumab yesterday which was a double whammy to my immune system and left me exhausted and feeling unwell all day. I'm still not feeling my best and am taking it very easy today. That denosumab is a miracle drug but it does have its drawbacks.

Gozer is still getting her allergy shots. Giving her the higher amounts of the serum isn't as easy as the smaller amounts because I think she notices them a bit more. It'll be easier once we get to the maintenance serum because then she only gets 0.5mL which is a relatively small amount that she doesn't really notice.

And that's all I have... it's been pretty boring here. Boring is good, though, because it means that I'm not freaking out about how much I have to do in the next few weeks.

Saturday, April 12, 2014

Gozer gets shots

Allergy shots, that is.

Gozer finally had her first allergy shot today, and I'm the one who gave it to her! We'd tried to start the shots a couple of weeks ago but then the vet was going to be away and he wanted to be there to oversee Gozer, so we delayed until This past Thursday, which is when the vet recommended that we start. 

But then when I put the schedule into the calendar I noticed that her weekly maintenance shots would be on Sundays and that's just not convenient for Ian's parents (who will be looking after Gozer when we're away) or for us if we needed a vet to do it. I asked the vet if we could shift the maintenance injections to the next day and the vet said no, so I rescheduled the first appointment for Saturday.

The vet was pretty upset with me for changing the appointment focus on Thursday but it worked out well anyways, I think. I was able to spend time learning how to give the injections with saline which I wouldn't have been able to do otherwise. It turns out that giving this kind of injection is really easy once you're shown how to do it. The first time I tried with saline, with the vet there, I completely messed it up because she didn't tell me how to hold the syringe or anything.  Once the technician went through it step-by-step I had a much easier time.

Gozer doesn't seem to have any adverse effects from the allergy shot. Interestingly, there are apparently two approaches to allergy shots: front-loading and ramping-up. In the front-loading approach, the injections start with high doses of the serum and then taper down and the ramping-up approach starts low and builds. Well, the vet thought that we were getting a front-loading type and that Gozer would need more supervision after the first couple of injections instead of the kind we're getting. Had they checked the email I sent with the dermatologist's information, they'd have known this and we wouldn't have had to wait two weeks to start the injections. Not that it matters in the long run that we waited two weeks to start the injections; when you're doing something for a lifetime, starting two weeks here or there doesn't make much of a difference.

Hopefully the next injections will go just as well and they'll help. Gozer has been panting more often as we've been walking out in the new spring weather. It isn't hot out - maybe 17C, max - so I figure maybe she's having trouble with the molds and stuff that are being uncovered once (almost) all the snow melted.